Source: Kia Manawanui Trust | The Heart of Aotearoa New Zealand
Thousands of Kiwi heart patients are missing out on a proven, life-saving heart medication because it is not publicly funded.
Kia Manawanui Trust – The Heart of Aotearoa is calling on Pharmac to fund a class of medicines called PCSK9 inhibitors that reduce ‘bad’ cholesterol.
This medicine could transform the lives of an estimated 1 in 250 New Zealanders living with familial hypercholesterolaemia (FH) – a genetic condition that causes dangerously high ‘bad’ cholesterol, putting them at risk of heart attack or stroke at an early age.
“I’m still young – I want to minimise deterioration as much as I can, because I want to be around for my son for a long time,” the 50-year-old says.
“I’ve got a lot more life to live and a lot more to give.”
Heart disease has already claimed his grandfather and uncle at a young age – and Matt worries he may be next.
“I just want to survive – and be there for my wife and our three young children as they grow up.”
PCSK9 medicines can dramatically lower levels of ‘bad’ cholesterol, offering patients like Korie and Matt a real chance at longer, healthier lives.
But in New Zealand, these treatments aren’t funded.
Patients must either pay thousands of dollars themselves or go without, leaving their cholesterol dangerously high.
Currently funded cholesterol medications aren’t enough to reduce ‘bad’ cholesterol to a safe level for patients living with FH.
Trust Chief Executive Ms Letitia Harding says the situation reflects a wider national failure.
“Unfortunately, their stories are not unique – it is the reality for thousands of New Zealand families living with FH, an inherited heart disease.
“They are living with a constant ticking time bomb inside their chest, while the treatments that could save their lives are sitting on the shelf, out of reach.”
The lack of funded treatment options for heart disease, in general, is appalling, Ms Harding says.
“We are decades behind other countries, including Australia, where these medications are already funded and changing lives.”
Pharmac needs to ring-fence a dedicated fund for cardiac drugs, she says.
“Heart disease is the number one killer in New Zealand, so it makes sense to do this.
“Every day we delay funding vital heart medications means more heart attacks and deaths that could be prevented.”
This World Heart Day (September 29), the Trust is encouraging Kiwis to ‘Know Your Numbers’ – a campaign aimed at understanding your cholesterol levels. An estimated 1 in 250 Kiwis have FH, but less than 2% are diagnosed.
